And drumroll......I got my PICC line out!! No more TPN! Woo hoo! This time we tapered off of it slowly and I think my body handled that better than just stopping it cold turkey. We stopped it completely 3 weeks ago. It was supposed to be taken out after 2 weeks, but I lost 4 pounds in one week, and my GI doctor was out of town, so no one wanted to pull it till he got back. I maintained my weight after that, so it was pulled on Wednesday. It feels really good to not have to shower with a plastic glove on, and flush it with saline and heparin every night.
I also saw my GI doctor on Wednesday and we had a good visit. He was happy with my weight. He thinks it would be good if I got a bone density scan, since it has been a couple years. We want to make sure that I am absorbing the calcium I take. He does want me to get a Small Bowel Follow Thru done to check for a fistula and see how much intestine I have left. I am also going to see the urologist to check for the fistula. I'm hoping there really isn't anything there. He also says he doesn't think we should try to have a baby yet. He is afraid I would be sick, lose weight, and end up on TPN again. :( We are going to start the adoption process. I want a baby so bad!
Since we are talking about my
health, I will also say that the Cimzia is helping my joints. When I saw the rheumatologist a couple weeks ago, only one of my fingers was swollen, and I was finally able to get my wedding ring off!
